Monday, August 22, 2016

Like a Lightning Storm (Part 2)

Part 2
Click here for Part 1 if you want to read it.

The meds really drain my energy.  When I first got on them, I would nap for at least 3 hours after classes, even if I had a good night’s sleep.  I have been able to adjust to them more since then, but my full energy never returned.  Another side effect.

If you have a friend going through a storm….

Please don’t act like it’s a big deal when you help a friend going through a storm-
No driving for 6 months (normal restriction after a seizure) during my student teaching.  Relying on friends during hard times is tough.  I had friends give me a ride from campus to my apartment just a couple times and act like they hung the moon for me.  Don’t get me wrong, it was helpful, but I had people I barely knew offer to do that much for me. 

Please, don’t get upset when your friend can’t be there for you during their storm-
I had several close friends try to deem what was best for me or our friendship and get upset that I couldn't be there the way they wanted me to at the time, instead of just making the time to be there and ask what my needs were.  It's not like any of us want to be in a time of extra need or vulnerability, but it usually happens to everyone at some point.  I’m really sorry that I forgot to ask how your day was, when I was struggling to stay awake while at the same time making sure I got enough sleep and didn’t drink too much caffeine, find a ride home, cope with an abusive boyfriend who eventually left me during the storm, remember to take my meds, remember what I was going to be teaching the next day, AND keep up with my friends too.  I wasn’t meaning to forget about you EVER, but at that time, I was in hell.  Where were you?

Please don’t act like doing a simple thing for a friend in a storm is a hardship for you-
I mentioned in the last post that a family member had a pretty traumatic experience too.  My sister broke her back when she got bucked off a horse at the beginning of this year.  She was bed-ridden for weeks.  The only thing she could do was watch tv or look at her phone.  When I saw how depressed she was about the injury and possibility of not riding again (plus the fact that she had crappy friends who barely visited her), I set up a surprise event online, asking friends to mail her some snail mail to give her something else to do. Two weeks later, my sister had received ONE thing in the mail! It was sent by MY sweet brother-in-law and sister-in-law. My brother-in-law has spent maybe a few hours with my little sister, and my sister-in-law has never even met her....and some of those invited to send encouragement have known her for YEARS! How discouraging! It's "friends" like this that have made my sister want very little to do with church people. STEP UP. BE JESUS.  Unless you had an excuse worse than breaking your back, it takes only a few minutes to pick out a card, write a few sentences, address and stamp it, and put it in a mailbox. I actually had a friend text me and tell me so many people only do online stuff now that that’s why no one was taking the time to send something in the mail and that I should set up a Facebook group to post comments for my sister.  Really?  Did you NOT just read that Facebook and tv is ALL she could do all day?  I was trying to give my extremely discouraged sister something a little more than a Facebook comment that takes all of 5 seconds to type.  My sister doesn't have the type of godly, caring friends that I do (or thought I did)....this was supposed to help, but instead it showed me just how many people I can count on in times of need. (Note- a few more people stepped up after I wrote this summary on Facebook right after her accident, so she ended up getting a few more things delivered.  To those, I am extremely thankful.) 

EVERYONE has a busy life. That is the CRAPPIEST excuse, and my sister and I both heard it.  You don't think everyone has busy times in their life? Yes we all do, but don't neglect your most loyal friends in their biggest times of need. BE THERE for the ones you care about, ESPECIALLY during the hardest times of their life! 

If you speak of loving people well, but can’t find time for something as simple as a sympathy card in the mail, your love is immature.  If you speak of loving people well, but you pat yourself on the back for giving someone a ride home once or twice, your love is conceited.  If you get angry at a friend not showing you attention during THEIR storm, your love is selfish.  Love is not just being there when it’s convenient, sometimes it’s about being there when it isn’t convenient at all.


It’s as simple as this.  If you think any of what I posted applies to you, whether it was in my situation, my sister’s, or a completely different situation, this is just meant to encourage people to brave the storm with your friend, instead of complaining about the rain through it.  Like I said above, no one wants to be in a lightning storm, but it happens to everyone at some point.  If you haven’t been through one, your time will come eventually…and I sure hope you have friends to walk through the floods….because if you don’t, the pain cuts even deeper than the storm by itself.  And if you are walking through one right now, please let me or someone else you trust know what is going on.  I want to walk with you.  No one should feel as alone as I did.





Love,
Leslie

P.S.  I do want to let a few people know I was extremely grateful for your encouragement and care for me during these horrible times- My family, education professors, Penn1 guy friends, Amber Webb, Allie Thompson, Angela Long, Bekah Brown, Emily Huebner, and anyone I barely knew who gave me a ride in those 6 months, and anyone who sent my sister something in the mail.  Your kindness did not go unnoticed, I promise!

Monday, August 15, 2016

Like a Lightning Storm (part 1)

I LOVE the summer Olympics.  I always look forward to the gymnastics competitions.  It is amazing to see what these athletes are capable of, how they can twist, turn, stretch, and push their bodies to do extraordinary actions.

At the same time, it is a reminder at how fragile bodies can be.  It is the anniversary of one of the most terrifying times of my life.

I wrote this on my blog right after it happened…

That night started out as an ordinary evening spent with my family. We were talking and watching the Olympics. Then, I lay on the couch. For the next few minutes, I don’t remember anything. Mom said it looked like I was stretching, then got stuck that way. I started trembling. I was having a seizure. It lasted a minute or so, then I went unconscious. My face turned blue.  My parents called an ambulance. I didn’t wake up until the paramedic gave me oxygen. Then, he took blood, asking me basic questions, like where I go to school. My family tells me I was so disoriented I acted like a child, pushing the oxygen mask away, and complaining about them taking blood from my finger, and giggling about my answers to the questions. I don’t remember a thing. I remember them asking me a question about something right before getting into the car to go to the hospital. We were at the hospital for at least 3 hours. They did a brain scan, checked blood pressure, and did several other tests. All came back fine. We got back home past midnight and I slept almost all day afterwards, still having a headache.  Seizures are sometimes caused by stress, eating at unusual times, and/or caffeine.  I felt a little dizzy, not much, but then I was just out. I’ve never had anything like this happen to me since my stroke at birth.

It happened 8 years ago. 
I still have side effects, like migraines that come on so hard, I lose my vision for 30 seconds or more.  Thank goodness I’ve only been driving once when it happened, on a road with few cars and I could pull off real fast before I wrecked into something.  The meds really drain my energy.  Sometimes, my memory is not as good as it once was.

While in college exactly 2 months later, I had another one.  After that, I got put on epilepsy medicine (which I will probably be on the rest of my life because I was told after you have 2 seizures, there is a 50/50 chance that you could have another one in your life)  and was not allowed to drive for 6 months.

Someone once described a seizure like this- 



End part 1
Love,

Leslie

P.S. I know this was kinda dramatic, but a friend recently told me they had no idea that I had had a grand mal seizure (the most dramatic kind) which is funny because I was so open about it, yet felt so very alone at the time….and something pretty dramatic happened to a family member this year, and she had many react the same way people responded to me afterwards.  So, part 2 will be a "How to respond during a lightning storm in your friend's life".  Just hoping to help others in really crappy situations.